Life has never and probably will never be easy for Jaelyn. This is a very hard blog to write because it stirs up a lot of emotions for me. First and foremost I must say this; my son has a Learning Disability. As a family we never know what each day will bring us. It’s all new to us but as we learn to cope with his issues as a family, then Jaelyn flourishes as a child.
We have opted for medicine to help with his ADHD. This is not up for debate, this is what our family chose. We also chose during this time to engage Jaelyn in behavioral therapy. We brought in the therapist to help us reach a medication free lifestyle. One day he may not need medicine, I pray for that day. I also know that day may never come and I’ve come to terms with that. With that said, his learning disability does not define who he is; it is simply an obstacle in his journey.
When Jaelyn was 3 months old he underwent his first surgery. He was diagnosed with pyloric stenosis. It’s where the muscle from the stomach to the small intestine is narrow and hard. They had to go in and snip it so he could pass food. His formula was spoiling in his stomach before it could make it to his small intestine. Every time I fed him he would projectile vomit everywhere, it was scary. His burps smelt like rotten eggs, it was foul. (He has also had numerous ENT surgeries over the years, with the most recent 2 months ago)
Months following his pyloric stenosis surgery, he quadrupled in size. He was the chunkiest little kid I had ever seen and he was beyond cute.
Jaelyn is in 1st grade now and it has been one hell of a road, already. Don’t get me wrong, I am more than ready to travel that same road for the rest of my life, I’m just exhausted. He’s turned into a product of his environment.
One day he came home and was telling me a story about the bad kids and how they had gotten in trouble. I smiled and asked him what it meant to be a bad kid. He said stuff about behavior in the classroom, they use bad words, and get in trouble a lot.
Jaelyn then said, “I’m not bad like them, not really.”
I started laughing and asked him what their names where. When he listed them off I noticed they were all kids I’ve heard him tell stories about that start off with my best friend. He was part of the bad kids!
I called him out on his white lie and he retaliated in true Booga fashion, “I said I wasn’t as bad as them, they’re fun to me but I am not the baddest of them all.” Ok kid, you got me. In this case I’m proud to say he’s a follower and not a leader, though I wish he’d associate with the non-notorious kids and possibly lead that group.
Jaelyn is and always will be my hero. Before it was because he saved me but now it’s because I see him overcome so many obstacles. Something as simple as simple as tieing his shoes, takes a lot longer than other kids to learn. But he did it, because he’s a beast and with a lot of encouragement Jaelyn can accomplish anything he wants. Positive reinforcement is the key to success with him.
No matter where life takes him I will always be by his side, cheering him on. Six years ago I fell in love with this little baby I had grown inside of me. I didn’t know I could love someone that much. Over the years it has surpassed any expectations I had going blindly into motherhood.
Jaelyn is the bees-knees!